www.healthy-kids.info

Home

Frequently Asked Qs

How Can You Help Me...?

Memo to Asthma Educators

For Health Professionals

Work/Family Programs

Need an Advocate?

Resources

About Ellie

Success Stories

Contact me


Indicators of Educational Equity

The ADA: How Does It Affect You?


Advocacy Works
This letter was successful in giving a parent information to share with the school.  The school staff recognized that the parent's information enabled them to update policies and practices that resolved the disagreement about meeting the child's needs.

Dear XXXX,

The information below is written in response to your questions about managing the risks related to S's food allergies at school and on the school bus.  


In brief, S's safety on the school bus should be addressed in S's Individualized Health Plan (IHP) developed by the school nurse. 


You also need to request a "Section 504 plan" that details the special precautions and emergency plans for ''S's safety and the continuity of care that her condition requires typically called "guidelines or "accommodations" and "related services." 


1. School Responsibilities and Student/Parent Rights


Information regarding educational rights and responsibilities is available from a variety of sources. 


When you inform the school that your child has special needs, such as food allergies, the school district should provide you with the state Department of Education Parents' Rights booklet. 


If your school has not given this booklet to you, contact your school district's director of special education, the school's Section 504 compliance officer (who should be named in the parent handbook with the required notice of Section 504 rights), or your school's Special Education Parent Advisory Council.


You can probably also download the booklet from your state's Department of Education website. Also see the Federation for Children with Special Needs website http://www.fcsn.org/parentguide/pgintro.html


You can find information about eligibility and your federal civil rights in The Civil Rights of Students with Hidden Disabilities under Section 504 of the Rehabilitation Act of 1973.  It is available on the U.S. Department of Education's Office for Civil Rights website.


2. Safety on the Bus


The time a child spends on the bus needs to be as safe as the time the child spends in school. 


The school district's protections and services extend to all areas and school-related and extracurricular activities and services, not just the classroom.


The school nurse and/or school principal share responsibility for reducing the risk of allergenic exposures and for ensuring a prompt and effective response in the event of a life-threatening allergic reaction at all times during the school day and in all school settings -- on the bus as well as during all school events and extracurricular activities.  


S 104.37 Nonacademic services.

(a) General. (1) A recipient to which this subpart applies shall provide non-academic and extracurricular services and activities in such manner as is necessary to afford handicapped students an equal opportunity for participation in such services and activities.


(2) Nonacademic and extracurricular services and activities may include counseling services, physical recreational athletics, transportation (emphasis added), health services, recreational activities, special interest groups or clubs sponsored by the recipients, referrals to agencies which provide assistance to handicapped persons, and employment of students, including both employment by the recipient and assistance in making available outside employment.


Regulations implementing Section 504 of the Rehabilitation Act of 1973 prohibit discrimination "by contract." 


S 104.4   Discrimination prohibited...

                  (4) A recipient may not, directly or through contractual or other arrangements, utilize criteria or methods of administration (i) that have the effect of subjecting qualified handicapped persons to discrimination on the basis of handicap, (ii) that have the purpose or effect of defeating or substantially impairing accomplishment of the objectives of the recipient's program or activity with respect to handicapped persons, or (iii) that perpetuate the discrimination of another recipient if both recipients are subject to common administrative control or are agencies of the same State.


In other words, a school cannot contract with a bus company, a food service or other entity that operates in ways that would discriminate or have the effect of discriminating against a student with a disability, especially by creating or ignoring conditions that endanger a child.


A complete copy of the regulations can be obtained from the US Department of Education's Office for Civil Rights website.


3. Availability of Epinephrine on the bus.


In the case of a child at risk for a severe allergic reaction, the school must provide for the immediate administration of a life-saving injection of Epinephrine by a trained first responder at all times.  With the parents' authorization for medication administration and emergency care (standard school form) and a physician's medication orders and recommendations for S, the school has the necessary documentation it needs to develop appropriate safety steps.


I was surprised to see your school's statement regarding Medication on the school district's website.


In accordance with state regulations and policies, no prescription medication will be administered to students without a written authorization from a physician. (4.4.3f- School Committee Policy). In the case of short-term medications, (ie: antibiotics), the original prescription container with pharmacy label serves as the physician's authorization. In order to protect all students, no medication may be brought to school or taken home by a student. All medications, (including over-the-counter), must be brought to the health office by a parent or guardian in the original container. (When having a prescription filled, ask the pharmacist to provide you with two containers). No child at any level is ever permitted to carry medication to school, or to take medication on their own in this school system. Tylenol, Benadryl and other over-the-counter medications may be administered with a signed permission authorization from parents. Medication orders are good for the duration of the school year, and are renewable annually.


This policy is not consistent with current state regulations. 


Several years ago, the Massachusetts Department of Public Health School Health Unit developed exemplary regulations regarding the Administration of Prescription Medications in Public and Private Schools, 105 CMR 210.000. 


In recognition of the increasing numbers of students with food allergies and other life-threatening allergies, the regulations include specifics pertaining to the administration of epinephrine.  The regulations require the "identification of places where the epinephrine is to be stored following consideration of the need for storage at places where the student may be most at risk.  The epinephrine may be stored at more than one location or carried by the student when appropriate."  [105 CMR 210.100 (E) (4) ]. 


Your district's Special Education Administrator, Section 504 compliance officer and or School Nurse should be familiar with state regulations. However, they may not be aware that your school's current posted School Policy conflicts with current regulations.  Note: If a school policy undermines, contradicts or violates state law, or federal laws such as IDEA or Section 504 requirements or mandates, it is invalid.


4.  Options


Individual circumstances and priorities differ from school to school system and child to child.  In some school districts, school districts employ bus monitors as trained first responders.  They are responsible for implementing safety measures detailed in the student's individualized health plan or Section 504 plan.  


If the student is determined to be too young to reliably transport or carry the medication on his/her person, the bus monitor carries the necessary medications needed by students with food allergies, asthma, diabetes and other health conditions. 


School districts sometimes arrange special transportation in taxis, vans, or other small vehicles to reduce the number of students, to reduce time spent in transit, and to reduce other risk factors typical of large crowded school buses. 


In some districts, the school administrator and parents agree that the school district will reimburse the parents for providing transportation when the school's transportation system cannot meet the necessary safety standards.  The decision is the result of balancing the child's medical, developmental, social and educational needs.   


Thank you for your interest in Health Kids.  Please feel free to share this letter and other Healthy Kids articles and resources with your school nurse and school staff.


Best regards,

Ellie Goldberg, M.Ed.


Please note that information in this letter is provided for educational purposes

It does not substitute for the professional advice of your physician or lawyer.

 


ELLIE GOLDBERG, M.Ed. is an education and environmental health advocate for healthy children, safe schools and sustainable communities – clean water, clean air, clean energy and safe food. Inspired by the legacy of Rachel Carson, who taught that our health and security is intimately connected to the quality of our environment, Ellie is active in public health, environmental, educational and public policy organizations working to increase citizen engagement, government accountability and corporate responsibility on behalf of children and their healthy development. 

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Ellie.Goldberg@gmail.com 

Thanks for your interest in Healthy Kids